The Lowdown On Baby Show London 2022

I can’t believe we’re actually saying this, but The Baby Show is finally back as an actual event in London this weekend at ExCel! No longer are we tuning into virtual talks from the comfort of home, as we can now try out products once again for ourselves before committing to buy! With Alex flying today, my dad came with Alice and me for the trip to London so we could give you the lowdown on what to expect at The Baby Show this weekend. 

Getting to the show: 

The best way to The Baby Show is by public transport. Not only is The ExCel well served by the DLR, with both Custom House and Prince Regent in easy reach. If you’re coming from central London, take the Jubilee line to North Greenwich and take the Emirates cable car across The Thames for £3 each way (under 5’s free) on the production of tickets or the email to show that you’re going to ExCel London for the event. If you don’t fancy the tube, take the Uber Boat from central London to North Greenwich instead for a different view of London. It’s incredible to compare the sights from the river and then the cable car either before or after, and Alice loved her first boat ride! 

Steph, a white woman with her brown and blonde hair in a ponytail is sat down wearing a blue jumper whilst holding Alice, a white baby with brown hair who is wearing a cream pram suit who is fascinated by the view. They are on the cable car going across the Thames!
On the cable car!

If you do need to drive in, the ExCel has plenty of car parking, and you can even drop your bags and pick them up when ready to leave. However you decide to travel, don’t forget to download your COVID pass before you make your way to the show, as you’ll need this to gain entry. 

At The Show

Once you’re inside The Baby Show, there is a lot to discover! The Made For Mums testing track is back, so you can try out different pushchairs. In addition, there are various other must-visit areas, including the baby changing area sponsored by Lidl, which features free wipes, nappies and other products from their Lupilu range. There’s also the baby feeding cafe with baby food samples from For Aisha. If your little one is allergic to dairy, soy or egg, I highly suggest trying this brand. You can pick up a range of samples to take home with you too! We will be trying out this brand with Alice, so keep an eye out on our Instagram to see how we get on. For Aisha are also running a competition on their stand, which can be found at C50! The cafe also has a quiet breastfeeding area for more privacy. 

Steph, a white woman with her brown and blonde hair in a ponytail is sat in her wheelchair wearing a blue jumper, black trousers and hand splints whilst holding Alice, a white baby with brown hair who is wearing a dark blue floral top with light blue jeans. Behind them is a green tent with a large grey cuddly toy by it. Behind on the wall is a false window with pink curtains.
Inside the changing area
A photo of a baby foodprep area with microwave, prep machine, bottle warmer and cups with pink and purple spoons in. Above is a shelf with various coloured bowls and pouches containing meals for babies.
Baby feeding cafe featuring For Aisha meals and pouches!

Must-Visit Brands

Nearly all of the brands at The Baby Show are offering discounts and doing special show only bundles no matter their size. We have used some of the brands personally already, and some we’ve only just discovered at The Baby Show, but we will be ordering if we haven’t already brought from those brands. 

MAM Baby (B72): 

Although Alice is breast/chestfed, we use a range of MAM products, including the soothers (their night range glow in the dark, making finding soothers so much easier in the wee hours) and the bottles when Alice has expressed milk. There are some fantastic show offers, including soothers from £4.50, Bottle accessories from £4.50 and huge savings on pumps. MAM is also offering 1 to 1 appointments with their experts at the show. 

Photo of various MAM soothers and dummy clips on their stand.
Soothers on the MAM Baby stand

Muchkin & Bear (C44): 

We’ve been looking at playmats for a few weeks now as Alice is starting the outgrow the play gym. Being a wheelchair user, we need a tough mat that can be easily stored or take a good bashing from the constant rolling over and, of course, is suitable for Alice! We got to try the large mat at the show, and Alice absolutely adored it. We just need to decide which colour combination we want (the mats are doubled sided), and then we’ll be ordering over the weekend! 

Alice, a white baby with brown hair wearing a dark blue long sleeved top with floral patterning on is laying on her tummy whilst holing her head up on a grey and cream striped play mat. In front of Alice is a bright green toy with a blue tree on.
Play time!

Snuz (E20, E50, E60, E80): If you have followed us for a while, then you’ll know Alice sleeps in a SnuzPod co-sleeper, and we use the Snuz Pouch and other products in the Snuz range. There are some fantastic offers over the show, including bundles with the SnuzPod.  

Ella Bella’s C41: When Alice had a sock emergency, this gorgeous brand came to the rescue! Not only did we leave with a pair of adorable socks with pom-poms on (they also do bow styles), we also picked up some booties that can tighten, making it more difficult for little ones to kick them off! 

photo of Alice, a white baby with brown hair who is wearing a dark blue floral top with light blue jeans and white socks with pom poms on being held by a person wearing a black leather jacket. They are on the cable car.
Alice showing off the pom pom socks!

Mima Accessories (B11): While Alice doesn’t like to keep headbands on (hence why we don’t have an extensive collection), that hasn’t stopped us from starting a hair accessories collection! We picked up 3 bows from their 3 for £5 bowl, and there are also other various offers on accessories from the brand. Mima Accessories happens to be the newest range from Mima Interiors, and products from the interiors range can also be found on their stand at The Baby Show. 

Cybex (E20, E50, E60, E80): Cybex again is a brand we’ve used from birth as Alice happens to have two of their infant carriers. Both the Aton m I-Size and Cloud Z I-Size infant carriers fit onto the Bugaboo Cameleon 3 pushchair for convenience via adapters. The L.S.P. side impact system on the car seats is also a big plus as it enhances little ones’ safety in the car. However, one feature that the Cloud z has over the Aton M is that it can lay flat in pram mode, something to consider if you’re likely to be doing many short trips using Uber or taxis. 

The Positive Birth Company (C39): Whilst we didn’t find out these lovelies were at the show until after we left, we had to give them a shoutout once we knew that they are indeed at The Baby Show this weekend! We were honoured to be part of their #ProudParent campaign last year, and the courses that The Positive Birth company offer are second to none! The Positive Birth Company also have an Amazon Alexa skill which I loved using during my pregnancy to relax and keep the positive vibes going when the going got tough! 

Some brands sadly aren’t at The Baby Show this time around. Bugaboo and Ergobaby are the two biggest ones that people will miss from the show. We use products from both of these brands, and they have features on some products which are extremely useful for disabled parents. It’s sad to not see them there, but hopefully, they’ll be back in the future! 

Are you going to The Baby Show this weekend? Share your favourite moments, brands and tips with others in the comments! 

Going To Big Events With A Newborn

For some parents of newborns, there will be events that you wish to attend but are worried about taking your new bundle of joy with you. Whether it be a summer fair or a big event for your town or city, a fireworks display or a Christmas light switch on, attending with a brand new baby in tow means lots more things to think about! Big events typically mean lots of noise and lots of things going on, which can be overwhelming for your little one! 

Despite many stressful events surrounding Alice’s health, we have still managed to get out and about with her. Alex and I crave normality and for us, going out and about to our favourite events gives us that little bit of much-needed normality in what has been a stressful couple of months. But how do you safely take your precious bundle of joy to significant events and on busy days out? Well, here we share products and tips that have really helped us! 

1. A suitable baby carrier

Alice has two baby carriers, one which I use with her when out and about, and the other one is Alex’s favourite. For me, the Ergobaby Omni 360 is the best baby carrier for many reasons. Firstly, as the carrier is structured, I can safely carry Alice despite being a wheelchair user without risking any dislocations. Secondly, the pouch on the front of the carrier is large enough to put cards, passports, phones and other small but essential things in there and keep them on me. Not only is this excellent safety-wise, but it’s also an excellent feature for when travelling and at large events. For example, I used the Ergobaby when taking Alice to her first football match. In addition, the carrier is easy to get babies in and out of. This meant that Alice had lots of time out of the Ergobaby that day! 

a selfie Steph, a white woman with brown and blonde hair wearing a black baby carrier with Alice, a small baby with brown hair and wearing a white jacket inside. The baby carrier has blue and blue ear defenders and a blue Chelsea bib attached to it.
Alice in the Ergobaby!

Whilst I absolutely adore the Ergobaby, Alex loves the wrap style carriers, so we also have the Hana Baby Wrap, which he uses with Alice when we’re out and about. However, he is going to try the Ergobaby later this month when we go to London! The wrap style is great as it can be used with smaller babies subject to clearance from a medical professional. It also allows little ones to be held in many different positions and closer to whoever is wearing them. However, I found that as a wheelchair user, the wrap style isn’t that safe until little ones can hold their head up, which is why Alice is carried by Alex a lot more than by me! 

Alex, a white man with red hair and wearing glasses is looking towards the camera smiling. Alex is wearing a blue and pink jacket, and a black baby wrap which has Alice, a small white baby with brown hair inside.
Alex carrying Alice in the Hana baby wrap

2. Good ear and eye protection! 

Tiny ears and eyes are extra-sensitive. A baby’s hearing can easily be damaged by loud noises and speakers if too close. For us, getting Alice not one but two pairs of Banz Baby ear defenders was a no brainer. Having two pairs means we can keep a pair at Alex’s and a pair at mine, which means no worrying about losing ear defenders and having no backup, or worse, leaving them at the one house when going to an event from the other! True story; Alex didn’t know about the second pair until I took Alice with my dad to her first Chelsea match! He was panicking about her having no ear defenders until I sent a photo of her second pair attached to the carrier, ready for when we got to Kingsmeadow! 

A selfie of Alex, a white man with red hair wearing clear framed glasses carrying Alice, a white baby with brown hair wearing light blue and black ear defenders.
Alice rocking one of her pairs of ear defenders!

As for eyes, sunlight can damage little eyes, and it can be hard to find suitable sunglasses for babies. Luckily, Banz Baby also have a selection of matching sunglasses to go alongside their ear defenders! The sunglasses fit around the head using an adjustable headband, and both the ear defenders and sunglasses can be used until the little one is around 2 years old before needing to move up to the next size. 

3. A good changing backpack

I have raved about this changing backpack in a previous post, but it really is excellent for days out, going to large events, travelling and just as your usual day to day changing bag. Not only does this particular bag from Amazon have a big main compartment for a change of clothes, snacks etc. It also has a bottle pocket that can store three bottles, a phone charging port (need your own battery pack) and a pocket for baby wipes! The most significant function for me, however, is the inbuilt cot and changing mat. Not only does it mean you can change your little one with privacy, but they can also nap in it when out and about during the day if at a picnic, for example. The cot also features a sun canopy for protection on sunnier days or as a barrier against the wind when using it when outside. It’s important to note that the inbuilt cot isn’t suitable for overnight sleeping, however, so you’d still need a travel cot if going away. 

Overall, large events can be done with a bit of planning and organisation beforehand. However, having a baby doesn’t mean life has to stop! You can very much still have a life and attend events like Christmas light switch on, Pride, picnics, fun days etc., with your bundle of joy! 

Do you have any tips to help new parents who want to go to events with their little ones? Then, share them in the comments! 

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Meet Our Little One!

TW: This post details our NICU journey and the reason why our baby needed NICU. 

Following on from our birth story blog posts, it’s time to introduce our little one to you all, as well as what happened next! 

Our little miracle and fighter, Alice Frances Margaret, was born at 0710 on 21st August 2021, weighing 2480g. She came into the world face up, which meant the first of Alice’s many facial expressions we were greeted with was her extremely grumpy one which Alex managed to get a photo of. 

Alice, a small white baby with brown hair is wrapped in a white towel and wearing a white hat. Alice has various bruises from the forceps on her face and is extremely grumpy!
Alice at 23 minutes old!

Perfect in every way, I was so glad to get some skin to skin with her. However, my right arm had been severely affected by the epidural, which meant I couldn’t lift my arm or move it very well, so Alex and Paige, the midwife who took over from Sarah shortly after Alice was born, had to help me with holding her. All was going perfectly until 79 minutes after Alice’s birth. 

People always say expect the unexpected, but what happened at 0829 on that Friday, just 79 minutes after Alice’s birth, shook both Alex and me to our cores. It really was the worst moment of our lives so far, as Alice stopped breathing while on my chest, and we didn’t even realise it. I genuinely thought that Alice had fallen asleep on my chest. Even when I mentioned it to the nurse looking after us in recovery in search of reassurance, the fact that she didn’t respond made us both think it was ok. It wasn’t until Paige came back in 30 seconds later and realised what had really happened that all hell broke loose. 

Having your baby swiftly taken off of you and seeing medical staff resuscitate them whilst the emergency buzzer means more medical staff are swarming into help is something that neither of us would wish on our worst enemy. I honestly thought we’d lost our baby, and Alex was that focused on trying to see what was being done to Alice that one of the staff had to try and force him to come and comfort me as I was being pushed out of the bay to a different area of recovery. We had no idea at that moment in time if our baby would make it. The 15 minutes it took to find out the update was the longest 15 minutes of my life. It truly felt like hours. 

The doctor who came to give us the initial update on Alice happened to be one of the doctors who looked after my mum in 2013 when she was fighting for her life in ICU. The second he said Alice was breathing, I felt the most enormous wash of relief pour over me. It didn’t matter that they were still trying to stabilise her and that the neonatal team were transferring her to NICU at that point, she was alive, and that was all that mattered. 

Shortly after the initial update, I was transferred back to the labour ward, and Alex came with me. At this point, I was trying to process exactly what had just happened to us, but if I’m honest, my brain couldn’t take anything in. As soon as I saw my dad and he realised that Alice wasn’t with us, I burst into tears once more because I couldn’t get out exactly what happened and Alex had to tell him for me. It would be another 24 hours before my dad met his first grandchild, as our NICU had a rule that grandparents could only visit on weekends in the afternoon due to covid. Still, it was a lot more lenient than most NICUs in the UK. At the time of writing this blog post, some weren’t even allowing parents to visit their child/ren together. 

Soon we received another update from the doctors working on Alice, and with them came the news that our baby was finally stable but not yet out of the woods. One of us was allowed to go and see her, but I couldn’t push myself in my wheelchair, so I told Alex to go down and get lots of photos and videos for me until I could go myself. As upset as I was that we weren’t going together, I knew that Alex would be able to prepare me for when I finally got to see Alice. After Alex got back, we were moved to postnatal, so I sent dad home to get some rest before bringing the colostrum we’d harvested to the hospital. I was an absolute hot mess, so before going to neonatal myself to check up on Alice, Alex helped me get showered and changed. He then briefed me on all the rules and what to expect, but if I’m honest, nothing could have prepared me for what I was about to be wheeled into. 

Having a baby in NICU is something I wouldn’t wish on my worst enemy. Seeing your child so unwell and not being able to hold them is tough. Once Alex wheeled me down, and we’d both washed our hands, he took me over to Alice. She looked so unhappy, which make me shed tears once more. She was covered in wires, hooked up on oxygen and on fluids. Her incubator felt like this massive barrier; I couldn’t hold her or do skin-to-skin to comfort her. It was a far cry from how everyone expects the first few hours after giving birth to go. Thankfully, one of the nurses came over to ask if I wanted to put my hand in and comfort her that way, which I jumped at the chance to do. I felt awful for Alex, who couldn’t hold or touch Alice the entire time she was in NICU. It wasn’t until Sunday, when Alice was on transitional care, that he got to hold her for the first time since she’d stopped breathing 2 days earlier. On the other hand, I got my first cuddle on Friday night whilst being able to feed her. However, it was filled with anxiety as the position I had her in for feeding was the same position she was in when she’d stopped breathing 12 hours before. 

Alice, a small white baby with brown hair is laying on a pastel yellow and pink coloured patterned mat in an incubator. She is wearing a nappy as has oxygen prongs in her nose, a cannula on her right hand and various wires over her body. She looks very grumpy!
Alice in NICU

Although Alice was out of NICU after 40 hours, followed by 2 days on transitional care before going home, those 40 hours taught me so much about a world few know about. Being NICU parents really showed Alex and me just how strong we are, even if we doubted that strength before. Before going home, we managed to catch up with Paige, the midwife who literally saved Alice’s life and between her and the neonatal doctors got as much information as we could. Unfortunately, not all the questions were answered; we’ll never know the reason why Alice stopped breathing. The fact she did in the first place shocked even the team looking after us, especially as Alice had an Apgar score of 9 just 1 minute after birth and then a perfect 10 at 5 minutes. A few have asked us if my Group B Strep infection caused it or if the reduced fetal movements played a part, which again is something we’ll never know. However, although we were fully covered with antibiotics for Group B Strep, Alice’s infection markers were raised when checked, so she was placed on IV antibiotics for a few days as a precaution. Since we’ll never know what caused her to stop breathing, we have been warned it could happen again. It’s something I constantly hope doesn’t happen, but if it does, Alex and I both know how to resuscitate babies and infants thanks to work. 

September is NICU Awareness Month, and we’re so proud of our little fighter who made it through. We’re forever thankful to all the staff who worked on Alice and got her well enough to come home as quickly as she did. We’re also grateful for the support of Bliss, a charity here in the UK that provides information and support to parents of babies born premature or sick, as well as research into improving care and treatment.

Alice, a small white baby with brown hair is wearing a white vest and laying on her back with her head turned to the side in her snuzpod, which has a white sheet with grey stars on the mattress. There is a grey blanket covering Alice and she is asleep.
Alice Now!

Our Birth Story: Part One – Induction

Finally, the time has come for us to share our baby’s birth story! After our baby was born on 20th August 2021, we thought it would be nice to share our birth story and what happened. As it’s pretty lengthy, we’ve split it into two parts – induction up to labour in part one and labour/birth in part two. We hope that sharing our story will help those of you who are giving birth in similar circumstances.

Wednesday 18th August 2021

After nearly three weeks of being in hospital (bar home leave to sort out the last few bits between CTG monitorings), the day had finally arrived to induce labour and meet our little miracle. Although this date had been the planned date for the last four weeks of my pregnancy, getting there wasn’t guaranteed, especially after finding out about the fetal growth restriction and the low baseline heart rate that would often get picked up on overnight CTG monitorings. 

At 0830, the midwives who we’d gotten to know very well in the final few weeks came to transfer us over to the delivery suite. Unlike most people who have their inductions started on the antenatal ward, my consultant wanted me on delivery suite to keep a closer eye on me because of my risk factors. We were fortunate that because everything had been well planned out in the weeks leading up to induction day, we had the largest room in delivery suite, which is usually reserved for multiple births. It meant that I had room to move around in my wheelchair, even with all of our bits and pieces. 

A few minutes after arriving in our room, my consultant and the team on the delivery suite with her that day came to say hello, discuss the plan and see if we had any questions. After we discussed the plan and exchanged a few jokes about the size of my suitcase (a great mood lightener which helped put my nervousness at ease), we were left to get settled in. About an hour later, the midwife looking after me for the day came in to examine me and start the induction! 

As my cervix wasn’t entirely favourable, our induction was started with a Propess pessary which was left in for 24 hours. Alex and I spent the rest of Wednesday morning watching Netflix. Later in the day, dad arrived, so we decided to go outside and get some much-needed fresh air before they went home.

Thursday 19th August

At around 0330 on Thursday, the contractions I’d been having for weeks beforehand were finally strong enough to trigger my headaches. The problem with this, however, was that my blood pressure also became spiked. Thankfully paracetamol took the edge off a bit for a couple of hours until it stopped doing anything. 

Come 0900, the contractions were getting stronger but still not regular. The team looking after us for Thursday came to introduce themselves and discuss seeing if the Propess had done anything. At 1030 we had another monitoring done before the pessary was removed. Although it had softened my cervix, we still weren’t in a position for my waters to be broken, so it was time to try the gel! The gel went in around 1100, meaning we’d be checked at 1700 to check progress. 

By lunchtime, the headaches had really ramped up, and nothing was working. Alex had to help me transfer when I needed to catheterise as the pain was triggering my spasms and making transfers nearly impossible. Eventually, at around 1500, the team asked me if I wanted to try an epidural and set the wheels in motion to get it set up. Anaesthetics were called to discuss when to start it. As my waters hadn’t been broken, they were worried it may be in for too long if they were to do it at that point, so instead, they inserted a cannula to try and push IV paracetamol through in an attempt to take the edge off. Unfortunately, due to poor veins on my right side, it took the anaesthetist 3 tries to get the cannula sited. 

1700 soon came, and it was time to check my progress. Alex had gone home for a few hours around 1600 and joked that it looked like I’d peed myself; knowing that it would take a lot of retention for that to happen, I told him that was highly unlikely. Well, you can guess what it actually was that Alex saw – my waters! Somewhere between 1500 and 1700, they’d decided to go on their own. This was great news in that my epidural could be started. However, it also meant my IV antibiotics needed to be started as well. The team of midwives I’m under for my care were called, and Sarah arrived soon after. 

Sarah jumped into action when realising my antibiotics to cover us for the Group B Strep infection I was found to have hadn’t been started. It turned out that most of the team on the labour ward that day hadn’t realised I’m Group B Strep positive on top of all the other things they needed to know about me, so Sarah made sure they were brought up to speed. Around this time, the anaesthetics team came to put in the epidural, which thankfully went in without too much trouble, providing much-needed relief from the headaches. 

Alex arrived back just after the epidural was sited, and then it was time to get the oxytocin drip in that would make contractions more regular! The drip was started around 2130, and at this point, my cervix was still very much closed, so we knew it would be a slog – or so we thought! 

Fast forward to midnight and another check, we were still closed. But at 0300 on the 20th August 2021, the unexpected happened. We were 4cm dilated and officially in labour! 

Find out tomorrow in part two for what happened during labour and birth! 

Our High Risk Pregnancy So Far: Why We’ve Accepted Induction Of Labour

The last few weeks have been stressful with no news and, as a result, no plan. Finally, at 36 weeks, we now have one, but it might not be the plan everyone was expecting us to have. If you haven’t read our previous post about our pregnancy journey so far, you can read the last one here

From the start, we always knew that I’d require some sort of medical input when it came to labour time and birth. Our biggest fears were that I’d be pressured into accepting a c-section which for me would mean a difficult recovery and relying on Alex and our families for almost everything for the first 8-12 weeks, both in terms of my care and little one’s. I’ve always been for a physiological birth, or as close to it as I can possibly get, only going for a c-section or other interventions if absolutely necessary, especially as it would very likely need to be done under general. Luckily, the result of the MDT meeting was that if I don’t want an elective c-section, then I don’t have to have one, but it’s under the condition that I’m aware we could still be heading down that route if either little one or I don’t cope well in during labour. 

How the option of induction came about and why we accepted

One of the biggest things about not going down the c-section route is unpredictability and the risks involved. For us, not only do I have a medical condition which means I can’t feel movements or contractions and have to palpate for them, but I’m also at risk of precipitous labour. Then, to top it off, we found out that I have Group B Strep at 26 weeks, and I’m also at risk of other complications. It meant that the idea of induction was proposed to us, with all the risks and benefits involved. Benefits? We’d have an idea of when my labour will begin, and with it, the option to ensure Alex is off work for a few days so that he doesn’t miss the birth. It also eliminates the risk of me giving birth at home with no help other than Alex’s Avmed training, which, whilst the scope of what Avmed covers is fantastic, where childbirth is concerned, it doesn’t equip you for a complicated labour birth. Cons? If it fails or something else happens, it’s a c-section since assisted delivery via forceps or ventose is out of the question due to dislocation risk. It also further increases my haemorrhage risk, something my consultant already factored in early on so that there’ll be medication drawn up and on standby if it’s needed. 

As my midwife talked to me about induction some weeks ago when Alex’s roster and being back at work was causing me stress around whether or not he’d even make the birth, Alex and I had actually spoken about the possibility of induction. We researched the risks and benefits before my consultant had even offered it to us to come to a decision together without feeling pressured. After those discussions with Alex and my midwife, I said that if induction was offered to me, I’d accept it to reduce the risk of that happening as him not being at the birth would be heartbreaking for us both. It also gives us some control over the situation as long as little one stays put and I don’t go into labour before induction day, something which could happen and my consultant warned us about when we accepted the offer. Alex had already made it clear that he’s scared of waking up during the night to find me still asleep whilst in advanced labour, something which we both know would affect him massively even with all of the training he’s equipped with, thanks to him being crew! 

As you can see, accepting an induction of labour was an easy decision for us once we’d weighed up all of the risks and benefits. Even with the risk of having to go down the c-section route if something goes wrong, the thought of having an unattended labour and birth with all of the dangers attached due to my complex medical history scares Alex and I more. We are also fortunate that we never felt pressured by the team looking after us to accept induction, mainly because we’d had that discussion ourselves beforehand, giving us time to fully consider everything. Not only is there information on induction of labour available to read in my handheld notes, but we also turned to Google to research the specific risks that are unique to our situation and spoke to other pregnant people who have EDS. But what if you’re enjoying a lower risk pregnancy and offered induction, or just don’t know if you want one?

Research is your best friend

Alex and I both know people who have been offered induction of labour and felt little pressure to accept, as well as plenty of people with low-risk pregnancies who felt forced into accepting an induction to keep their team happy. We started looking into our options quite early on once our consultant told me that she’d do everything possible to keep our options for labour and mode of delivery open. That kind of support from her when every other specialist outside of obstetrics had told me that c-section was the safest way forward meant the world to both of us. It also meant that we felt even more supported by the teams looking after us, both at our local hospital and the Silver Start Unit in Oxford, who we’re so thankful to have the specialist input of. 

Great places to research induction include Google (especially as you can tailor your search to your unique situation) and your handheld notes if your hospital provides information on induction of labour in these. I also highly recommend speaking to people who’ve had an induction of labour offered about their experiences, even if they didn’t accept the offer, as firsthand experiences can often help the decision making process. This same piece of advice goes for those who have medical conditions which could influence management. There are plenty of online groups on Facebook etc., which allow you to connect with others going through similar! If you can, start researching and discussing your thoughts with someone else early! This means by the time an offer of induction is given to you (if it is), you’ll have already thought about it and either decided on whether or not to accept, or you’ll have an idea of what questions to ask. It also means that whatever your decision is, you’ll be able to explain the reasoning behind your decision to whoever is looking after you knowing that you’ve given yourself time to consider all the risks and benefits. I’ve also learned to use one acronym that has helped us massively with each decision we make, called B.R.A.I.N. 

What is B.R.A.I.N?

B.R.A.I.N really is what it says it is; it’s using your brain to make an informed decision. 

B – Benefits (what are the benefits of this test or procedure for me and my baby?) 

R – Risks (what are the risks of this test or procedure for me and my baby?)

A – Alternatives (What, if any, are the alternatives?) 

I – Instinct (What is my instinct telling me? What do I think and feel about this test or procedure? Who else can I ask about it?)

N – Nothing (What could happen if I decide to do nothing or wait and see? Can this test or procedure be delayed? Can I take some time to think about it or research?)

B.R.A.I.N is something we’ve used throughout our pregnancy journey to make informed decisions and choices that we know are right for us without feeling pressured into doing something we may not necessarily want to do. It’s also something that we will continue to use and advocate that others use, especially as it is such a handy tool to have. With the NICE draft guidelines meaning that an increasing amount of people are already being offered induction at 39 weeks even if there isn’t a clear clinical need, now more than ever, birthing people and their partners must be able to make informed decisions without feeling pressured into accepting something they may not actually want. 

Have you been offered an induction of labour or had one in the past? Feel free to share your experiences in the comments with us! 

Accessibility When Pregnant: A Disabled Parent-To-Be’s Point Of View

Being pregnant and disabled seems to throw near enough everyone. If it’s not people making assumptions and comments related to becoming a disabled parent (see our blog post on that here), it’s the lack of access to maternity care. Society can’t get to grips with the simple fact that disabled people have lives, have relationships, create families, and need the same access to services as able-bodied people!

Healthcare settings, in general, are not the most accessible places for disabled people. For example, wheelchair users requiring cervical or other screenings often can’t get onto the beds or close to the machines and sometimes can’t even get into the room they need to go in. In addition, sighted guidance training doesn’t always seem to have been provided to staff, and thanks to Covid-19, masks mean that those who rely on lip-reading are often left not knowing what’s going on. This is just the tip of the iceberg of access problems.

For me, in maternity specifically, the access issues have recently become a nightmare. Whilst the antenatal clinic is relatively accessible at my local hospital for wheelchair users, the same cannot be said for labour triage upstairs! Right from the beginning, my midwife has made as many of my appointments as possible with her home visits. Not just because of my vulnerability status regarding Covid-19, but because my home is set up for me. I can transfer out of my chair onto the sofa or the bed when it’s time to check little one’s positioning and listen to their heartbeat, and I also feel much more at ease because hospitals and I have a pretty bad history.

At my local hospital, labour triage has two assessment rooms. Both rooms are so small that as a wheelchair user, I’m unable to move around in either. It also means I can’t transfer onto the bed on a good day, can’t be hoisted in these rooms on a bad day, and to top it off, if I need monitoring, then it’s done with me sitting in my wheelchair, which can mean that the CTG doesn’t always meet criteria. If I need other examinations for whatever reason, the only option available is to wait for one of the larger delivery rooms to free up. The problems don’t stop there either, as in labour triage there’s no disabled toilet. It’s a case of me making sure I take a urine sample in with me when I go in, or I have to go downstairs to the disabled toilet to do one. It also means that if I need to catheterise whilst upstairs, we then have to go downstairs to do that. So far, in the few visits that I’ve had for various scares, I’ve found two delivery rooms that have toilets I can use as they have grab rails in, although on one of these I’ll still need help to transfer as the grab rails aren’t on both sides.

My access needs have become a bigger worry as the delivery day nears. Will I end up being a burden on already overstretched staff when I need help in the times Alex or other family coming to visit us aren’t there? I’ve already been made to feel like a burden once when a registrar didn’t understand my needs. If it wasn’t for the fact that my own midwife was with me when it happened, I probably would have broken down even more than I did. At 33 weeks, when we were worried I may have gone into preterm labour, I was seen in one of those tiny triage rooms. The registrar was adamant that they could help me onto a bed that both my midwife and I knew I wouldn’t be able to safely get on without being hoisted. In the end, my lovely midwife said to me, ‘I’m going to go and speak with the others to get you into one of the delivery rooms because there’s no way we’re risking a dislocation!’ Having that kind of advocacy during one of my most vulnerable moments has been invaluable.

The lack of access around the hospital is such a worry that I’m dreading the postnatal period whilst in hospital. Will there be enough room around the bed for my chair and my case, especially with little one’s cot to contend with as well. Will I be able to use the bathrooms and toilet on the postnatal ward? If I need to be hoisted, will there be room for that? Thankfully, I have such a great midwife that she’s already thinking ahead to that period, even to the point of planning to ask for me to have a side room which will mean more space. Anyone who’s given birth in a hospital knows that side rooms on postnatal are a rarity, so if we do manage to get one, I’ll be even happier. With my medication having a sedative effect, I know that it’s going to be a tough ask, but my access needs are just as important as other needs in the bigger picture.

Many won’t realise this, but July marks Disability Pride month. If you didn’t know that, it’s likely because you haven’t seen the equivalent of rainbow washing that companies perform during Pride month in June. You see, companies don’t seem to bother with disabled folk; I’ve seen hardly any talk about how they’re helping disabled people or making their services more accessible. Our communities’ struggles aren’t for one month of the year, they are every single day, and that’s why active allyship and advocacy for disabled people and their needs is so important! As I’ve said in this post, how my midwife advocates for my needs is invaluable. Not only to me but to Alex as well because he is also worried about my needs not being met if he’s not with me in hospital for whatever reason. After little one has arrived, I’ll be doing a post about how having almost one-to-one care throughout the pregnancy has really helped me and why I believe everyone should have access to that level of support if they need it!

Our High-Risk Pregnancy So Far: 32 Weeks And Still No Plan!

If there were a list of posts that we hoped we wouldn’t be doing, this is one of them! I knew from the start that pregnancy wouldn’t be easy. Alex and I spoke about that fact in detail quite a few times, as well as about what we would do in set situations, but we never thought we’d get to a point where we have no plan so soon to little one’s arrival! 

Going through a high-risk pregnancy takes its toll, and with ours, we have another problem; high levels of uncertainty. Uncertainty around labour because I can’t feel movements (more on that subject here), uncertainty and worries around neonatal withdrawal and how my medication has impacted little one, and finally, uncertainty over whether or not my body will cope with physiological birth. The latter could be true for anyone. After all, no one knows for sure if they’ll get the birth experience they dream of, but we quietly hope that everything will go to plan and for our preferences to be fully respected and carried out without question. 

For me, I’ve been adamant from the beginning that when it comes to mode of delivery, I want a physiological birth if at all possible. So when I attended my first appointments with obstetrics and my midwife, I made a point of telling healthcare professionals that I want to try, even with the uncertainty around my body being able to cope. Here’s the thing with my EDS; it’s unpredictable, especially as my dislocations can happen at any given moment. I also have autonomic dysfunction, spinal involvement, and on top of that, we don’t know for sure what type of EDS I have. Although I found out in 2015 that I have EDS, until 2019, everyone assumed it was the hypermobile type. But when my thumb joints failed to the point of needing fusion and other symptoms began popping up, there were concerns that I have classic EDS and not the hypermobile type. So when I fell pregnant again and got referred to Silver Star in Oxford, doctors there decided to get me tested and find out once and for all if it is indeed classic EDS. This very bit of information will be the difference between me getting my way and getting the chance to have a physiological birth or having to go down the c-section route. 

Up until 26 weeks, the obstetric teams I’m under all agreed to keep an open mind. However, a swab I had done when I started spotting again picked up Group B Strep. It’s not an issue during pregnancy, but it’s a problem in labour or if waters go since you need to be on antibiotics as soon as possible to reduce the risk of passing the infection onto baby. It’s yet another complication we could have done without, as it’s further heightened both mine and Alex’s anxiety around labour and birth. It’s also left me worrying that even if I can have a ‘normal’ delivery, physiological birth could out of the question if the team eventually recommend that I have an induction. 

Why The Idea Of A C-Section Scares Me 

Let me start by saying that you have to do what is best for you and your baby, and no two birth experiences will ever be the same. For birthing people who choose to go down the c-section route, I fully respect your decision and know that it isn’t always easy to make. 

For me, many of the worries around c-section delivery are linked to past medical trauma, which I’m still working on processing. My EDS means that both local and regional anaesthetics are ineffective to the point that I’ve had to be put under general for surgeries where most could be awake. In one surgery last year, I had a failed regional, and my last memory before being put under was screaming in pain as the anaesthetic failed to numb my arm. I also had problems coming around from the general afterwards, which wasn’t ideal. Luckily, we’ve been able to speak to the lead obstetric anaesthetist at the hospital in-depth about this and other issues, including my long list of allergies! During our conversation, the anaesthetist we spoke to joked, ‘you’re not an anaesthetist’s best friend, are you?’ ‘No, I’m not, I’m a paperwork nightmare’ was my light-hearted reply. That conversation also highlighted other issues. However, we also had our minds put at rest over certain things. 

One of the other worries about having a c-section under general is that we were both put under the impression Alex would not be allowed into theatre for the birth. Usually, this is the case and was so even before covid. But we’ve been reassured that depending on who is the team on the day, Alex’s emotional state (good thing he’s crew) and that there are no emergencies involving myself or little one, he may be allowed into theatre for the birth. It’s something Alex is super happy about, and I’m just relieved over even if it isn’t for certain. Having my birth partner with me means having someone I know and fully trust to fight my corner and ensure my birth preferences are respected. This is especially true where delayed cord clamping and skin-to-skin contact are concerned (both of which I want regardless of delivery method). 

There’s also the worries around my recovery from a c-section. People forget that it’s major surgery with a lengthy recovery period! In my case, it means not being able to transfer myself for 6-8 weeks which means I’ll probably need to be on hoist transfers – something I heavily detest! A c-section recovery would also mean heavily relying on Alex, my dad and others since I’ll likely have to restrict how much time I can be in my wheelchair and up and about. I also take longer to heal, thanks to my EDS, so there’s the risk that the usual restrictions could last even longer. All of this makes me worry about how much I’ll be able to be involved in our baby’s care in those first weeks.

32 Weeks and still no plan

When I had my genetic blood panel done to find out what we’re dealing with in terms of my EDS, I was informed that the results would be the most significant determinating factor regarding what mode of delivery would eventually be recommended. There was hope we’d have them back at around 28-30 weeks, enabling us to get a plan in place and know what to expect. We also need to have an MDT meeting, where all the specialists involved in both mine and little ones care meet to discuss the way forward. However, we can’t have the meeting until the genetics are back, something that is starting to worry not just Alex and I, but my consultant, who is now chasing them up. 

We’re hopeful that by 34 weeks, we’ll have the results, the meeting and know what will happen. However, I feel disheartened and stuck in limbo. My birth preferences still aren’t complete because I don’t feel I can fully finish that off until we know what is going on. As we get further along, the possibility of going into preterm labour without a clear plan is not only becoming more likely as the days go by, it’s becoming more and more worrying! However, the biggest thing for me is that whilst there’s no plan in place, I’m holding out hope I’ll get the physiological birth I’m hoping for, even if others think that option is fading away.  

Photo of a white pregnant persons midriff, with blue and pink elastic bands holding 2 grey discs to the stomach area with grey colour wires going off to the right of the photo.

Our High Risk Pregnancy So Far: Movement Worries!

Firstly, this would have been a post about how things have changed between weeks 20 to 25, but that one will have to wait for a bit as one particular matter kept overtaking the majority of the post whilst I was writing – movements! 

To help people understand why I feel the way I do, we first have to talk about both how and why we track little one’s movements is a little bit unconventional. My condition means that from the top of my belly button down, I have no sensation and can’t feel fetal movements. The fact is that so far, the only time I’ve been able to ‘feel’ was last week when little one took one good swipe at my ribs and dislocated two of them! Because of my condition, Alex was the first to feel little one’s movements, and it’s something I’m super jealous over as it’s usually the person who’s carrying that gets to feel movements for a few weeks before anyone else can! 

So instead of going about my day whilst tracking them, my life has revolved around putting my hands on my stomach (Alex often joins in at home to cover more ground) every 90 minutes for 10-15 minutes each time since the day Alex felt bumps first movement. So essentially, we’re palpating for little one’s activity and seeing what they’re up to in there! It’s something I knew we’d have to do, but nothing could have prepared me for how complex tracking movements via this method can be since it’s only giving us a snippet of their routine. So imagine the panic we go through each time we don’t get anything when we are palpating. 

Reduced movements

The one thing that is drummed into you when you’re pregnant is to track movements, that they are how you know your little one is well, and that episodes of reduced movements should be reported to your hospital. Of course, there are plenty of varying opinions on how much activity is normal, but only you know your little ones routine.

For most, spotting reduced movements is pretty easy but for us, only being able to feel movements by palpating them means that it’s challenging to decide when to pick up the phone. My first episode happened just shy of 24 weeks, so I phoned my midwife, who quickly decided a trip up to the hospital was needed. Since then, I’ve had four more episodes of reduced movement, three of those being in the last week. The difficulty in knowing when to phone about movements is made more challenging, especially as when I’ve asked about when Alex and I should be worrying, none of those I’ve asked has a concrete answer, and the difficulties in monitoring don’t end there. 

CTG Nightmares

Photo of a white pregnant persons midriff, with blue and pink elastic bands holding 2 grey discs to the stomach area with grey colour wires going off to the right of the photo.
All hooked up to the CTG monitor

Anyone who’s had a CTG or knows what one is will probably know that there are set criteria you have to meet for the monitor to return a normal result. Unfortunately, it can be tricky for a CTG to produce a normal result between 26 and 28 weeks, from what various doctors have told us. However, my condition makes it even more likely for monitorings not to meet the criteria.

Firstly, having to palpate for movements is difficult when the monitors are one your tum! But it’s the only way I can feel movement, and when I do, taking my hand off to press the button linked up to the machine often interferes with the monitoring to the point that we’ve had a loss of contact on some occasions. 

Secondly, my heart rate tends to run high – something that not only does the monitor not like, but it’s resulted in the monitor thinking that it’s picking up little one when it’s my heart rate that it’s picked up. It’s often picked up pretty quickly, but when little one shifts away, the monitoring ends up picking up my heart rate again, which means a lot of moving the monitoring plates around! 

Not meeting criteria always means having to see the doctors before we can go home, and visits during pregnancy have become so regular that I’m on first name terms with half of them, especially as there were many hospital trips at the height of my battle with hyperemesis gravidarum. The silver lining is that my history doesn’t need to be explained as they already know about me, but it gets to a point where it starts to run you down, and no amount of people telling you it’s ok to be worried can stop you from feeling like you’re becoming a nuisance. 

Feeling like a nuisance

Even if it shouldn’t, going back and forth to the hospital for the same thing gets me down. But, luckily, most of the staff are extremely understanding of the rather unique situation I’m in, even if it’s not something that they come across on a day-to-day basis which I feel lucky for because I know that’s not the same for everyone.

However, there’s been one time where I have felt dismayed by the response I received when I told one of the midwives how I have to palpate for movement. Not only were they confused on the phone, but they also continued to be either confused at or not able to accept the fact that because I have no sensation from the top of my belly button down, I’m unable to feel movements when I was at the hospital. It wasn’t until the doctors saw me that they changed their attitude and realised that I was serious about how my condition affects my ability to track little one. 

Thankfully, since that incident, I haven’t felt disbelieved, but it’s left me feeling like a nuisance even more than I would’ve felt. I even said to one midwife in day assessment that I’m hoping my consultant can organise a plan of action regarding movements. I know the almost daily hospital visits to be monitored if little one gets into a position that makes it impossible to palpate will wear me down further and cause more stress. After all, the ongoing problems with tracking movement almost constantly remind me that I’m in a very different situation to most pregnant people. 

Five Items We’ve Discovered That Will Be A Lifesaver When Little One Arrives

No matter what anyone says, planning for your baby’s arrival is a tough job! There are so many products out there, and everyone has their own opinion of what you do (and don’t) need. For me, there are more products on the market that are entirely unsuitable for our needs than those which are. However, there are 5 items we’ve found which, for us, will be a lifesaver when the little one arrives and may even be helpful for you!

  1. Snugglebundl blanket

If there’s one thing I’ve been worried about, it’s transferring our little one without disturbing them once they’re here. Anyone who’s ever tried to move a newborn will know they wake up the second you do it, which is precisely what the Snugglebundl aims to eliminate! This genius swaddle blanket comes with handles to make it easier to lift your little one without disturbing them. You can use this blanket to transfer them from car seat to carrycot or pushchair whilst out and about (the blanket is crash-tested), or as a hammock to rock them in and to keep them securely wrapped up and warm. It’s a great thing to have on hand if recovering from a c-section or other post-birth difficulties. However, as a disabled mum who has frequent joint dislocations, the Snugglebundl is something I’ve realised that I need regardless of what birth I end up having. The Snugglebundl will be getting used from day one to pick our little one up and move them about when needed, especially as it’s specifically designed to reduce the strain on the body from all the picking up!

2. Ergobaby Omni 360 Baby Carrier

Until we found out about this baby carrier during a virtual baby show, I was worried over whether or not we’d ever find a suitable baby carrier for both Alex and I to use with our little one. We already know that there will be days where I won’t have the energy or strength to push both myself and little one in their pushchair, and not all situations will be suitable for taking the pushchair with us. Alex also prefers the idea of carrying little one instead of using the pushchair. We’ll also be travelling a lot, which means a baby carrier has become a necessity. The problem with most baby carriers, though, is that they don’t provide enough support for my joints, or worse, not even being able to get it on myself!

The Ergobaby Omni 360 isn’t only great in that you can both forward and rear face in the carrier, making it suitable for toddlers and babies alike, but you can also back as well as side carry in it. The Omni 360 also has lumbar support for the person carrying little one and a lot of padding on the straps for even more comfort, something important to both Alex and I as we’ll be using it for prolonged periods when travelling with little one. The carrier is that good ergonomically that it has been classed as a hip-healthy product. The carrier also comes in a mesh material option, something we chose over the cotton option as we know it will be heavily used in warmer climates. Another plus is that if you’re one for going on days out, the carrier also has a detachable pouch for storing things like your keys, money, and phone. The carrier also has a privacy hood with UV protection, and you’re able to breast/chestfeed without needing to remove little one from the carrier too!

3. Changing backpack With built-in cot and phone charger

Continuing on with accessories for when out and about or travelling, changing bags are of course a must. However, most of them look too mumsy and obvious, whereas I wanted a changing bag which both Alex and I could use, and could also go on the back of my chair if I’m the one carrying little one. So a quick search for changing backpacks on Amazon led to me finding this absolute beauty. I’d seen one similar on Instagram in an advert but didn’t like the cost of it, so to see this one on Amazon made me very happy. Not only does it have a big main compartment for a change of clothes, snacks etc. It also has a bottle pocket that can store three bottles, a phone charging port (need your own battery pack) and a pocket for baby wipes! The most significant function for me, however, is the inbuilt cot and changing mat. Not only does it mean we can change little one with privacy if out and about somewhere without changing facilities, but they can also nap in it when travelling during the day, or have a safe play area when travelling as well. The cot also features a sun canopy for protection on sunnier days or as a barrier against the wind if using it when outside. It’s important to note that the inbuilt cot isn’t suitable for overnight sleeping, however, so you’d still need a travel cot if going away. However, I still think it’s a great bag, and the dimensions of it when the cot isn’t in use means that if you’re flying with little one, the bag will go under the seat in front of you.

4. Benbat Portable Booster Seat

For me, the highchair situation has been one of the most stressful things to tick off because they just feel impossible to use, especially as I’m a wheelchair user who is unable to weight bear. However, there is another option which if Alex didn’t know existed, I would’ve never have found out about it! A portable booster seat has similar functions to a highchair but is lightweight, great for travel so you can feed little one anywhere, and can be placed wherever it’s needed. The one we’ve found is from Benbat, and whilst it won’t be suitable until little one can sit unaided, it will be an absolute lifesaver once they can use it. Another thing I like about the Benbat is that not only is it portable, it also comes with storage compartments to pop some of little one’s bits and bobs in. This is great, as you can forgo the changing bag and pop a change into the storage compartment of the booster seat instead if going out locally.

5. Elvie Catch

If you are breast/chestfeeding or expressing milk, suffer from leakage, and don’t want to spend loads on disposable pads or lose milk that’s produced, then the Elvie Catch is an excellent investment. Not only are these collection cups good for catching let-down or leaks from the other side when pumping, but the Catch is also wearable and slip-proof, meaning that you can wear them for up to three hours at a time without worrying about any leaks. In addition, each cup can collect up to 30ml of milk and is easy to clean by hand or dishwasher. I’ve already started having minor leaks, so I have been using this as an excuse to get used to wearing the cups, and I can honestly say that I haven’t had any problems with them slipping when going about my day, even when I have been pushing myself around in my wheelchair!

Have you found any products that have been a lifesaver for you with your little one? Share them with us below!

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Our High-Risk Pregnancy So Far

From the moment that positive test result shows, you imagine what the little miracle growing inside you will look like, what they’ll be like, their hobbies and interests, which parent they will be closest to etc. But what if you have a high-risk pregnancy?

Around 8% of all pregnancies are considered high risk. Most will have heard about gestational diabetes and pre-eclampsia. But some pre-existing medical conditions can get you placed in the high-risk category from the moment your GP or hospital are informed about your pregnancy! Luckily, I knew I’d be high-risk before I even got pregnant. However, for those who don’t expect to be told that they have risk factors at their booking appointment, the news can come as a huge shock.

So what should you expect if you have a high-risk pregnancy? 

I can only speak from my personal experience. However, you can almost certainly expect to be under consultant-led care. Exactly when you meet your consultant depends, but I met mine when I was 13 weeks pregnant. At your first appointment, they’ll discuss your risk factors with you, then make a plan regarding what you need from there. For me, things like starting Fragmin injections and high dose Folic Acid had already been actioned as soon as the local Early Pregnancy Unit confirmed viability at just over 5 weeks. But what I wasn’t quite expecting was to be told that I needed a referral to a different hospital this early on.

Referrals to a different hospital usually only happen if your hospital doesn’t have the specialists required. We had to be referred because I hadn’t had a maternal medicine consultation since 2017. Additional risk factors for referral included my medical and family history (we have a few congenital defects in our family). Luckily, it was to one of the best units in the UK, the Silver Star Unit at Oxford, and I can’t thank them enough for everything they’ve done so far. Not only have I now had a maternal medicine consultation with them, but we’re also under the genetics team for testing that needs to be done before I go into labour! Thanks to Covid, my Silver Star appointments have been virtual, but it’s meant that Alex has been able to be with me on the calls, as it’s something he likely wouldn’t have been able to attend if the appointments were face-to-face in Oxford due to flying schedules.

Thankfully, the lovely people at Silver Star have been advising our local hospital’s obstetrics team of everything that needs doing so that we don’t have to make the 120 mile round trip to Oxford. Luckily, the consultant at my local hospital had the majority of things recommended in place already: the anaesthetic referral due to local anaesthetics being completely ineffective, a GTT at 28 weeks, Fragmin injections and growth scans to keep a close eye on the little one. I’m also under a team at my local hospital who are experienced in dealing with high-risk pregnancies, meaning that I get the same midwife right up until I go into labour, and if not my midwife, then another midwife from that team will be with me during labour and delivery. The only thing that needed adding on top of the original plan was cervical length scans due to my pre-term labour risk.

As I get further into this pregnancy, one thing that will definitely be increasing is monitoring. Not just through growth scans, but no doubt regular checkups to listen to the little one. Unfortunately, due to one of my conditions, I’m not able to feel movement, so Alex and I have to palpate my tum for them instead. Interesting fact – Alex felt little one before me! We’ve already had one period recently of not feeling little one move for a while, which led to a triage visit, something that my midwife suspects will increase as this pregnancy progresses.

All in all, there aren’t too many changes appointment and monitoring wise with high-risk pregnancy until you get further along. Apart from my 13-week consultant appointment, 17-week growth scan, and two appointments with Silver Star, all my other appointments have been what you would expect in any pregnancy (booking appointment, 12-week scan, and 16-week appointment). The only difference I’ve had with my midwife appointments is that mine are face-to-face and done at home unless I need blood tests (most appointments are phone call due to covid), and my midwife attends all my scans with me as well as local hospital consultant appointments.

Want to know more about our high-risk pregnancy journey? We’ll be doing monthly posts about what appointments, scares and more we’ve had! If you have a question in the meantime, pop it in the comments below or send us a message on Instagram, and we’ll get back to you!